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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Hi We have a plan An escape plan! I am going to have a scan today then out I am (deep breath) going to have the cyclophosphamide again I'm going to have a mini pulse of steroids with it If I flair again after Then it's double steroids I need the left knee replaced as it's causing probs in pelvis foot leg and hurts everything not least that knee. I need to have that done The right one although 7/10 knackered it's prob going to last a bit more So I'm going to have the left done Then when recovered sufficiently Have the right one synovectomy and debridement done I'm exhausted Bernice is ill I must get home Thanks so much for all the supports i so need them how to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Jenni,
glad to hear you'll be home today.
good luck when you take the next dose of the new drug,
really sorry to hear about your knee's. mine aren't good with Osteo but i cling on to them as i couldn't face anything done with them yet.
hoping things turn around for you quickly,
Suzanne x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Another deep breath here. Why are they giving you the drug again? I know the CRP etc have decreased so presumably they think it is helping the RA. Nosy of Timperley xx K ordered yesterday so should be with you by Monday. Hope this is OK xxxx
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Oh God Bernice has scarlet fever I have told mum to get me but she says not til I've have scan at 4.30 as I have to look after me and her and dad and Kay (who I have every wk from homestart) are all with her. I keep crying how to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
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don't know what to say but sending a cuddle sweetie,dorothy
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Pleased you are getting home today Jenni, but have your scan first and try not to worry about Bernice (useless thing to say because I know you will!). Scarlet fever is not the dreadful disease it used to be, once on antibiotics she will be fine, and it seems she is being well looked after.
Make the most of the next few hours before the scan and REST!!
Hope Bernice is feeling better soon.
Love Doreen xx
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Rank: Advanced Member
Groups: Registered
Joined: 11/9/2010
Posts: 73
Location: Surrey
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Oh Jenni, how awful for you but I believe your Mum is right - you must have the scan and I agree with Doreen, the antibiotics will help your little one through and you'll soon be with her and that will cheer both of you up.
Best wishes...
Ellie
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Berny will be fine with the antibiotics and should pick up quite quickly. Your Mum is spot on about you remaining to have the scan. You have every right to cry xxxxxxxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/7/2009 Posts: 262
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Thinking of you Jenni.
Pleased you will be home later today AFTER your scan.
Hope Bernice recovers quickly, I'm sure she will.
Sending hugs
Diane x
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Rank: Advanced Member
Groups: Registered
Joined: 8/1/2010
Posts: 255
Location: hampshire
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oh Jennie - someone somewhere really has it in for you. But your Mum is right. You need to look after yourself- so that you can be there for everyone else. Bernice will be OK and you will soon be home for her. Many hugs
Sue
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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After all that They've cancelled the scan and are giving it through out patients how to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 346
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Typical! hope that means you are going home though.
Bevxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hope you and Bernie feel better soon, Jenni. Hugs, Kathleen x
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Rank: Advanced Member
Groups: Registered
Joined: 3/4/2010
Posts: 576
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Hope Bernice soon picks up and you can get that scan and move on a bit. What a horrible time you have had  Thinking of you all xx Ailsa
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Rank: Advanced Member  Groups: Registered
Joined: 9/3/2011 Posts: 717 Location: Torbay
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I'm glad you will be home soon. I wish Bernice a speedy recovery. The last thing you need right now is more stress but you'll probably feel less stressed by being nearby for her. Take care X
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Rank: Advanced Member
Groups: Registered
Joined: 10/19/2010
Posts: 88
Location: Saddleworth, UK
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I'm so sorry about the scan and Bernice.
Keep your chin up and I hope the antibiotics kick in as quick as they should and the scan date is soon.
Lxxx
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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I am home! how to be a velvet bulldoser
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Dear nosy of timperley Homebird of Southampton wishes to convey her warmest greetings Crp etc are much improved with steroids and rest The cyclophos is the last hope in a long line of drugs and the consultant has decreed it a good idea to give it another try I just need to get through these few cycles It might might work Esr down to 80 now so it's getting there. how to be a velvet bulldoser
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Rank: Advanced Member
Groups: Registered
Joined: 3/24/2010
Posts: 102
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welcome home. Bet you're all glad - how is Bernice - have the anti-biotics kicked in?
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Im amazed that bernice has got such lot brighter with 4 doses of anti biotics It's powerful stuff eh? She's still got a temp but her rash is lots better Michael has tonsillitis so that's the next battle Oh to be well To have a normal family life .... how to be a velvet bulldoser
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